Resources & Links

Down Syndrome Awareness

National Down Syndrome Society

National Down Syndrome Congress

National Association for Down Syndrome (NADS)

T21 Club of the Delaware Valley

Shane and Wyatt’s Down Syndrome Foundation

Band of Angels

Buddy Walk

Video: “Let’s Learn About Down Syndrome”

Health, Medical & Therapy

National Institutes of Health (NIH): Down Syndrome

Down Syndrome: Health Issues

Down Syndrome Health and Associated Conditions (NDSS)

How to Create a “Care Binder” (guidelines, templates and forms from CHOP)

How to Create a “Medical Home”

“Self Talk” in persons with Down syndrome

“Self Talk” in Adults with Down syndrome

Toilet Training for Children with Down Syndrome

Aging and Down Syndrome: A Health & Well-Being Guidebook

Social Security Benefits for People with Disabilities

Super Duper Publications

Talk — Down Syndrome: Resources for speech, language, & oral-motor/feeding in children with Down syndrome

Local/Private Therapy Resources:


Bucks County Intermediate Unit #22

Delaware Valley Association for the Education of Young Children

PaTTAN (Pennsylvania Training and Technical Assistance Network)

Parent Education Network (PEN)

PA Dept. of Education, Bureau of Special Education

PA Dept. of Education Standards Aligned System: The Curriculum Framework

Teachers’ Desk Reference: Support Systems for Educating Students in Pennsylvania

Tool Kit on Teaching and Assessing Students with Disabilities (from the U.S. Office of Special Education Programs)

The National Standards and Quality Indicators: Transition Toolkit for Systems Improvement

Down Syndrome Education USA

Pennsylvania Secondary Transition Guide

Think College!

IEP Goals Database

National Center on Universal Design for Learning

Advocacy & Inclusion

Pennsylvania Developmental Disabilities Council

National Association of Councils on Developmental Disabilities

American Association on Intellectual and Developmental Disabilities (AAIDD)

The Arc of Montgomery, Berks and Bucks Counties

The Arc of the United States

“Understanding the Office of Intellectual Disability Programs in Pennsylvania: Intellectual Disability and Autism Services” (“The Gold Book” 2013 Edition)

Pennsylvania Waiting List Campaign

PEAC (Pennsylvania Education for All Coalition)

The PEAL Center

Bucks County Right to Education Task Force: Call 1-800-770-4822 x2139 (leave a message) or email:

PA State Right to Education Task Force

Kids Together

Disability is Natural

“Inclusion” (AAIDD Online Journal)


Vision for Equality

Speaking for Ourselves

Best Buddies of Pennsylvania

Partners in Policymaking

Inclusive Schools Network

National Center on Inclusive Education

Early Childhood Inclusion

Research Synthesis Points on Early Childhood Education

PA Codes: Least Restrictive Environment (LRE) and Educational Placement for Students with Individualized Education Programs (IEPs)

Supplementary Aids and Services (SaS) Toolkit

Teachers’ Desk Reference: Inclusive Practices

“Welcoming All Students: Resources For PA Schools”

NDSS “Get to Know Me” Poster and Lesson Plan


Office for Dispute Resolution (Resources for Parents and Educators)

PA Education Law, Regulations and Legal Information

Education Law Center

Wrightslaw Special Education Law and Advocacy

Council of Parent Attorneys and Advocates

Pennsylvania Health Law Project

Public Interest Law Center of Philadelphia

Disability Legislation & Policy

Key Federal Legislation for People with Disabilities and their Families

A Guide to Disability Rights Laws (U.S. Dept. of Justice)

The White House: Disability Issues

The Capitol Insider

Down Syndrome Research

Down Syndrome Research and Treatment Foundation

Down Syndrome Research Center

Research Down Syndrome

Kennedy Krieger Institute Down Syndrome Clinic and Research Center

Sports & Recreation

Central Bucks Family YMCA ABILITY Programs

Hopes & Dreams Foundation

Bucks County Special Needs

Deep Run Valley Sport Association “Everybody Hits” Softball/Baseball Program

Special Olympics of Pennsylvania, Bucks County

Golf for Life!

CBAA TOPSoccer (The Outreach Program for Soccer)

Bux-Mont Youth Football and Cheerleading League: Pop Warner Challenger Division

Special Performers

Variety: A Children’s Charity, Greater Philadelphia

Camp Eagle Springs

Camp Pals

National Parks and Federal Recreation Lands Access Pass

Employment & Training

Disability Resources (U.S. Dept. of Labor)

The Pennsylvania Training Partnership for People with Disabilities and Families

The PA Client Assistance Program (CAP)

Down Syndrome in Arts & Media


Emergency Evacuation Planning Guide for People with Disabilities

The PA Premise Alert Program

FEMA Information for People with Disabilities and Special Needs

FBI Child ID App

General Interest

specialEDpost (Down syndrome news category)

Disability Scoop (Down syndrome news category)

BellaOnline Children with Special Needs Site

Disability Scoop

Reece’s Rainbow Adoption Ministry

VAS: The International Organization on Arts & Disability

Joni & Friends International Disability Center of Greater Philadelphia

Woodbine House Publications

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