New & Expectant Parents

It is never easy to learn that your child has Down syndrome. The news fills most parents with an array of emotions, questions and fears. The best we can do, as parents who have shared this experience, is to encourage you to learn all you can about Down syndrome, and to welcome, value and love your baby so that you can embrace hope for a bright future. The purpose of this section is to provide parents of children with Down syndrome with information and resources to help with some of the challenges you may face. Parents who have shared your experience have worked diligently to include practical and useful information covering a variety of topics:

BCDSIG_New Parent Welcome Letter

Things To Do_When You Learn Your Baby Has Down Syndrome (Bucks County specific)

Bucks County Herald Article About the BCDSIG

New and Expectant Parent Information from the National Down Syndrome Congress (NDSC)

Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome

A Mother’s Advice for Parents of a Baby with Down Syndrome

A Baby is a Baby First

Welcome to Holland

Announcing the Birth

How to breastfeed your baby with DS

Down syndrome fact sheet

How to Create a “Care Binder” (guidelines, templates and forms)

“People-first Language” guidelines

Down syndrome health care guidelines

Down syndrome health care record sheet

Down syndrome growth charts

Woodbine House books and DVDs

Eastern PA Down Syndrome Center

Trisomy 21 Program at Children’s Hospital of Philadelphia (CHOP)

Choosing Quality Child Care for a Child with Special Needs

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